- Public bodies and other duty bearers should ensure that accurate, reliable and comprehensive information and data related to disabilities are collected on a regular basis and maintained in an organised and systematic manner, while fully respecting the right to privacy and data protection, and for full realisations of human rights of persons with disabilities. In particular:
a) Information and data should be made available in open and machine-readable formats, using commonly available, open source or free software tools. Public authorities and other duty bearers should ensure that the data can be processed, evaluated, published and reused without undue restrictions;
b) Data should be disaggregated and reveal the multi-layered exclusions that persons with disabilities experience, including, but not limited to, disaggregation according to underserved areas, urban and rural disparities and upper and lower income quintiles.
- Public authorities should develop indicators and benchmarks that monitor a state’s progress towards the full realisation of the rights of persons with disabilities. In doing so, states should obtain guidance from relevant international global agencies with experience in producing indicators on different aspects of human development, such as the United Nations Department of Economic and Social Affairs, the United Nations Children’s Fund and the World Health Organization; as well as proposals for indicators and benchmarks developed by experts and civil society. They should also collect best practices with regards to legal, policy and regulatory factors impacting persons with disabilities and share information and knowledge in this area.